UK families at the CureSHANK symposium in Barcelona
Five UK families and four professionals spent four days in Barcelona hearing about gene therapy, repurposed medicines and clinical trials.
News
What's been happening in our community: Family Days, research and the brilliant people who fundraise for us.
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Over 300 people at our Family Day in North London
Nearly 60 families from across the UK and Ireland joined us for research updates, sport, Lego and a shared lunch.
Sean completes a tandem skydive for Willow
Sean Farrell jumped from 15,000 feet over Salisbury and raised £2,500 for PMSF UK.
Phillip and Alex skydive for Bastian
Bastian's dad and big brother jumped at Headcorn Aerodrome in Kent and raised £2,240.
Three generations take on the Peak District 50km Ultra Challenge
Heather Hodson and her parents walked 50km in 13 hours for Mollie, raising over £5,300.
Matthew cycles 100 miles for Harrison
Matthew Chambers rode 100 miles through London and Essex and raised £930.
King's College Chapel lights up green, and PMS is on the BBC
For Phelan-McDermid Syndrome Awareness Day 2021, King's College Chapel in Cambridge was lit up green.
Ten years as a registered charity
We celebrated our 10th birthday with 28 'Tea for Ten' events across the UK and Ireland.
Got news for us? Email social@pmsf.org.uk.