In June 2025, five families and four professionals from the UK travelled to Barcelona for the CureSHANK Drug Development Symposium and the Spanish PMS Scientific Conference.
The four days were given over to gene therapy, repurposed medicines and clinical trials, all aimed at bringing real change for the PMS community.
Many of the presentations are being uploaded to the CureSHANK YouTube channel. Subscribe there to be told when new ones appear.
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