Rare Disease Day 2027
A worldwide day for the more than 300 million people living with a rare disease.
Awareness day
Family Days, fundraising challenges and awareness days. Come along, take part, or cheer someone on.
A worldwide day for the more than 300 million people living with a rare disease.
Awareness day
Our next nationwide Family Day. Date and place to be announced.
PMSF UK event
Running, cycling, skydiving or baking: every challenge helps. Tell us about your idea at info@pmsf.org.uk and set up a page on JustGiving.
See our past events (6 listed), read the latest news, or find out about our Family Days.