Phelan-McDermid Syndrome Awareness Day 2026
Every year on 22 October, the PMS community shines a light on Phelan-McDermid syndrome.
Awareness day
Past events
A look back at our Family Days, conferences, awareness days and the amazing challenges our supporters have taken on.
Events
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PMSF International Family Conference, Aurora, Colorado
The Climb We Make Together: PMSF's thirteenth Family Conference, the largest gathering of the PMS community in the world.
International
London to Brighton cycle for PMSF UK
Turner Crombie and Frank Thorne cycled 55 miles from Clapham Common to Brighton Pier for PMSF UK.
Fundraising
Brighton & Hove 10K
Four PMSF UK places to run the Brighton & Hove 10K along the seafront.
Fundraising
CureSHANK Drug Development Symposium & Spanish PMS Scientific Conference
Four days on gene therapy, repurposed medicines and clinical trials, with five UK families and four UK professionals.
International
PMSF UK Family Day
Nearly 60 families and more than 300 guests from across the UK and Ireland.
PMSF UK event
News and fundraising stories
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UK families at the CureSHANK symposium in Barcelona
Five UK families and four professionals spent four days in Barcelona hearing about gene therapy, repurposed medicines and clinical trials.
Over 300 people at our Family Day in North London
Nearly 60 families from across the UK and Ireland joined us for research updates, sport, Lego and a shared lunch.
Sean completes a tandem skydive for Willow
Sean Farrell jumped from 15,000 feet over Salisbury and raised £2,500 for PMSF UK.
Phillip and Alex skydive for Bastian
Bastian's dad and big brother jumped at Headcorn Aerodrome in Kent and raised £2,240.
Three generations take on the Peak District 50km Ultra Challenge
Heather Hodson and her parents walked 50km in 13 hours for Mollie, raising over £5,300.
Matthew cycles 100 miles for Harrison
Matthew Chambers rode 100 miles through London and Essex and raised £930.
King's College Chapel lights up green, and PMS is on the BBC
For Phelan-McDermid Syndrome Awareness Day 2021, King's College Chapel in Cambridge was lit up green.
Ten years as a registered charity
We celebrated our 10th birthday with 28 'Tea for Ten' events across the UK and Ireland.