Registered charity no. 1157423

PMSF, our global partner

PMSF UK and the Phelan-McDermid Syndrome Foundation (PMSF) have been global partners since 2013.

A woman speaking into a microphone to an audience of families

PMSF is based in the United States and is the international organisation for everyone with Phelan-McDermid Syndrome around the world. PMSF UK supports people with PMS and their families in the UK and Ireland.

PMS is a rare genetic condition, but together we have a strong, worldwide support network.

Joining PMSF and PMSF UK

One membership form registers your family with both PMSF and PMSF UK. Once it has been received, your regional rep will welcome you.

Join PMSF & PMSF UK

To find out more about PMSF, visit the PMSF website (external website).

Phelan-McDermid Syndrome Foundation (PMSF) logo