Registered charity no. 1157423

About us

PMSF UK is a registered charity in the United Kingdom, run by families who live with Phelan-McDermid Syndrome every day.

A crowd of families applauding at the Family Day

In this section

  • A young man in a PMSF UK T-shirt laughing with a helper

    Our trustees

    The volunteers who run the charity. Most of them have a family member with PMS.

  • Children playing under a colourful parachute

    Regional reps

    Your local contact. They welcome new families in every region of the UK and Ireland.

  • Three people sitting on steps in PMSF UK T-shirts

    Our mission

    What we exist to do, as registered with the Charity Commission.

  • Volunteers standing behind the PMSF UK banner

    PMS GO

    The Phelan-McDermid Syndrome Global Organization, which PMSF UK helped to found.

  • A family with five children under a tree, all in light blue PMSF UK T-shirts

    Contact us

    Email addresses, our Facebook support group and how to join.