Our trustees
Our trustees are volunteers. Most of them are parents or grandparents of someone with Phelan-McDermid Syndrome.
Alison Turner
Chair of Trustees
Alison has three teenage boys, one of whom has Phelan-McDermid Syndrome. He is non-verbal, but theirs is a very loud and chaotic house.
Alison has lived in London for over 20 years and used to work in finance, organising conferences. She now runs Walk & Talk sessions on Hampstead Heath for parents of disabled children.
She has found a great deal of support among families in the Phelan-McDermid community, and loves that we can share stories and ideas and learn from each other.
Email Alison: alisonturner@pmsf.org.uk
Katie Greed
Trustee
Katie lives in Berkshire with her husband Tom and their daughters, Bella and Sophia.
Bella, born in 2011, has Phelan-McDermid Syndrome and was diagnosed at the age of 5. She has a small deletion, which has led to learning difficulties and speech delay, although she is now extremely sociable and chatty. Bella is a fashion queen and loves swimming and gym classes with her family.
Katie studied Neuroscience at King's College and follows all the latest research into PMS and child development.
Email Katie: katiegreed@pmsf.org.uk
Natalie James
Trustee
Natalie is a teacher and careers programme coordinator at an independent girls' school in Bolton, and mum to two energetic boys, William and George.
She first heard about PMSF UK when a close school friend's son was diagnosed with PMS as a baby. Since then she has made it her goal to raise funds for the charity and raise awareness of the syndrome.
Most of her free time is spent at her caravan in Abersoch with her boys, her husband Chris and their black Labrador, Luna. She also loves cooking for family and friends.
Email Natalie: nataliejames@pmsf.org.uk
Natalie Lingard
Trustee and Fundraising Lead
Natalie has three children, two girls and a boy. Her youngest daughter has Phelan-McDermid Syndrome. Life can be challenging but also incredibly rewarding, and every milestone, however small, brings real joy. Her daughter loves music, singing and dancing, and her happiness fills their home.
Natalie has lived in Lincolnshire all her life. She spent 20 years as a retail manager before travelling the world with her family for three years. She now works as Corporate Fundraising and Events Coordinator at St Andrew's Hospice in Grimsby, and runs her own event planning business.
Natalie joined PMSF UK after her daughter's diagnosis in 2023. She found great comfort in the support and shared experiences of other families, and the kindness of her local regional rep made a real difference. She is passionate about offering that same support to others.
Email Natalie: natalielingard@pmsf.org.uk
Tanith Sherwood
Trustee
Tanith lives in Birmingham with her husband Darren and their son Harrison, who has Phelan-McDermid Syndrome. Harrison is non-verbal, but theirs is a loud and musical home, and the kitchen is for dancing.
Tanith has worked in hospitality for over 25 years, with experience in event planning and administration. She loves country music and festivals.
She has been part of the PMS community since 2013, and has found the charity's social media groups and Family Days a huge support.
Email Tanith: tanithsherwood@pmsf.org.uk
Lynda White
Trustee
Lynda is grandmother to five boys and three girls; one of her grandsons has Phelan-McDermid Syndrome. She and her husband live in the West Midlands.
After a 30-year career in secondary education, where she was a SENCO and assistant head teacher, and a spell as a careers service manager, she is now retired.
A keen printmaker, Lynda makes her own prints and collects work by contemporary artists. She also enjoys time with family and friends, art exhibitions and reading.
Email Lynda: lyndawhite@pmsf.org.uk
